chess while dealing with anemia/health disorders
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Hey I’m sorry to hear you’re going through this. I have horrible chronic pain that keeps me in bed all day. I hope you feel better soon
Hey I'm very sorry to hear that chronic anything is just awful from what I hear and what I've seen chronic pain has a way of changing you. I know my pain is more mental, there is a physical aspect wehn i get my pitting edema outbreaks and gain 25 pound overnight. It;s not agaonizing pain to walk it hurts a bit but the problem is I lose anual dexterity of my ankle so I walk like i have a stick up my rear. Cgn3 is a MotherF*** because im already nearning stage 4 and theres an 80 eprcent chance i do get a transplant that Cgn3 follows it lol hard to find the silver lining. Id tsign up for a 5-10 year casket plan with a definite date if it ment not living with moderate to severe anemia and the side effects of 50mg of prednisone are insane for me. The anemia just keeps me tired and in a brain fog 3-4 days out of the week so it's hard to even plan anything. Ny just expedited me public assistance and im waiting for SSDI, I never though I would every in my life be on public assistance it's humiliating but it's reality now. What helps you cope? I'm still trying to figure it out
Like my my mother ives in cape cod and i live in her house with my sister, she's retired so she's helping me. She made me eggs this morning I take the plate i'm talking to her and within 90 seconds I drop the plate on the ground not be it slipped but because I forgot I was holding it and I did this before with a drink I nearly broke down in tears. I've been reading about meditating i'm trying to exercise. I thought yoga would be easier so I went to a class with a ftiend nd wow yoga is NOT EASY that stuff id hard it's deep intense muscle burn I couldnt hold the poses the entire time for 30% of the class. I did feel btter afterdpong it though so i'm trying to find a low intensity exercise routine.
So this is my sick account cant play on my primary when my anemia flares u, it's dropped as low as 5.3. I've been dealing with this for about a year but the last 6 months have been brutal. 5.4 is the lowest my hemoglobin has been. I've received 5 blood transfusions so far during hospital admissions one of the transfusions was back to back because when your at 5 which is when your organs begin to shut down they have to tansfuse you until your hemoglobin is at least 7. Some hospitals wont let you leave until it's 8 Garnett does 7. My levels have been average 7.4-9 having long term anemia and pitting edema really slow down cognitive function ,sometimes I sleep 14-16 hours a day I've improved this past 2 weeks been awake more. My comprehensive metabolic panel showing CKD in between stages 3-4 , feels bad man. When forecasting my future I planned on getting sick around age 70, I feel that's the age where you can truely say hey I've lived my life and I'm good with it w/e it is. I love playing chess but it's so frustrating when I drop 100 points playing a blitz or bullet session. Any advice or anyone gone through something similar.